Here’s another case where greed overtakes the welfare of those with no voices.
We humans are the reason why our wildlife suffer and die from garbage carelessly thrown into the ocean. We need to be more aware of what we do; keep in mind there are other animals on our planet besides humans. Let’s keep our world clean!
Originally posted on "OUR WORLD":
A very ambitious planned undertaking, Dr. Collins. Why don’t you include examining the brains of M.E. (myalgic encephalomyelitis) sufferers as well? Their brain inflammation is a great part of their traumatic suffering.
Originally posted on NIH Director's Blog:
Some have called it America’s next moonshot. Indeed, like the historic effort that culminated with the first moon landing in 1969, the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative is a bold, ambitious endeavor that will require the energy of thousands of our nation’s most creative minds working together over the long haul.
Our goal? To produce the first dynamic view of the human brain in action, revealing how its roughly 86 billion neurons and its trillions of connections interact in real time. This new view will revolutionize our understanding of how we think, feel, learn, remember, and move, transforming efforts to help the more than 1 billion people worldwide who suffer from autism, depression, schizophrenia, epilepsy, traumatic brain injury, Parkinson’s disease, Alzheimer’s disease, and other devastating brain disorders.
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A must read. This is a reblog of a sort of “reblog.” You’ll understand when you read this “beautiful piece of writing.” It is a description of what living with M.E. is really like by this courageous, creative woman.
Originally posted on Mast Cells & Collagen Behaving Badly:
A few months ago one of my friends shared a link on Facebook to a post written by a friend of hers who’s had severe M.E. for 14 years now. It’s a beautiful piece of writing and explains what living with M.E. is like far better than I ever could. I have the permission of the author to reproduce it here.
This description of M.E. screams at the injustice of calling this disease “Chronic Fatigue Syndrome”. Not once in this piece does Sarah mention feeling tired. What we have isn’t “fatigue”. It’s a complete collapse of every bodily system until just mearly breathing feels beyond us.
This piece also demonstrates why the diagnostic criteria for M.E. needs to be tightened, so that people with M.E. don’t get lumped together with those suffering from “chronic fatigue”. I have chronic fatigue as part of my Ehlers-Danlos – it’s nothing like how I…
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NIH has awarded the Medical College of Wisconsin and Baylor College of Medicine with more than $2.5 million over four years, depending on availability of funds. These two centers are to be used as the DNA Sequencing Core sites for the NIH’s Undiagnosed Diseases Network.
This announcement has been published today by the GenomeWeb Daily News.
Since M.E. (Myalgic Encephalomyelitis) is considered an undiagnosed disease by our government (HHS; NIH, etc.), why can’t M.E. be included in the study of genome sequencing?
There are so many goings-on behind the scenes that the NIH doesn’t want the general public to find out about. The whole scenario is scary. It is easy to feel overwhelmed, helpless and, yes, bushwacked.
I don’t know anything about genomics – I’m not a scientist. But, according to what I can decipher on Wikipedia, it is the study of genes, and DNA. Now, this would be great if scientists could come up with a biomarker for this “undiagnosed disease,” wouldn’t it? This has been the scuttlebutt going around amongst M.E. patients for a long time, and has been included in discussions amongst researchers who are chomping at the bit for funds to do just that.