A very ambitious planned undertaking, Dr. Collins. Why don’t you include examining the brains of M.E. (myalgic encephalomyelitis) sufferers as well? Their brain inflammation is a great part of their traumatic suffering.
NIH Director's Blog
Moonshot to the BRAIN
Some have called it America’s next moonshot. Indeed, like the historic effort that culminated with the first moon landing in 1969, the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative is a bold, ambitious endeavor that will require the energy of thousands of our nation’s most creative minds working together over the long haul.
Our goal? To produce the first dynamic view of the human brain in action, revealing how its roughly 86 billion neurons and its trillions of connections interact in real time. This new view will revolutionize our understanding of how we think, feel, learn, remember, and move, transforming efforts to help the more than 1 billion people worldwide who suffer from autism, depression, schizophrenia, epilepsy, traumatic brain injury, Parkinson’s disease, Alzheimer’s disease, and other devastating brain disorders.
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Posted in Advocacy, Health & Human Services, Illness, M.E., National Institutes of Health, Reblogs
Tagged brain, chronic disease, M.E., myalgic encephalomyelitis, neuroimaging, neuroscience, research grants, trauma
A must read. This is a reblog of a sort of “reblog.” You’ll understand when you read this “beautiful piece of writing.” It is a description of what living with M.E. is really like by this courageous, creative woman.
Mast Cells & Collagen Behaving Badly
A few months ago one of my friends shared a link on Facebook to a post written by a friend of hers who’s had severe M.E. for 14 years now. It’s a beautiful piece of writing and explains what living with M.E. is like far better than I ever could. I have the permission of the author to reproduce it here.
This description of M.E. screams at the injustice of calling this disease “Chronic Fatigue Syndrome”. Not once in this piece does Sarah mention feeling tired. What we have isn’t “fatigue”. It’s a complete collapse of every bodily system until just mearly breathing feels beyond us.
This piece also demonstrates why the diagnostic criteria for M.E. needs to be tightened, so that people with M.E. don’t get lumped together with those suffering from “chronic fatigue”. I have chronic fatigue as part of my Ehlers-Danlos – it’s nothing like how I…
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NIH has awarded the Medical College of Wisconsin and Baylor College of Medicine with more than $2.5 million over four years, depending on availability of funds. These two centers are to be used as the DNA Sequencing Core sites for the NIH’s Undiagnosed Diseases Network.
This announcement has been published today by the GenomeWeb Daily News.
Since M.E. (Myalgic Encephalomyelitis) is considered an undiagnosed disease by our government (HHS; NIH, etc.), why can’t M.E. be included in the study of genome sequencing?
There are so many goings-on behind the scenes that the NIH doesn’t want the general public to find out about. The whole scenario is scary. It is easy to feel overwhelmed, helpless and, yes, bushwacked.
I don’t know anything about genomics – I’m not a scientist. But, according to what I can decipher on Wikipedia, it is the study of genes, and DNA. Now, this would be great if scientists could come up with a biomarker for this “undiagnosed disease,” wouldn’t it? This has been the scuttlebutt going around amongst M.E. patients for a long time, and has been included in discussions amongst researchers who are chomping at the bit for funds to do just that.
Posted in Advocacy, Health & Human Services, Health Issues, M.E., National Institutes of Health
Tagged genome sequencing, genomics, Health and Human Services, HHS, myalgic encephalomyelitis, National Institutes of Health, NIH, undiagnosed diseases
A message for today.
Wishing you all a lovely Sunday. 😀
You have an impact on people you didn’t know you had.
You are special!
Hold tight to what matters most.
Amy Granberg wrote:
“I took this photo of a father being reunited with his son after his son got lost in Central Park. “
share this powerful image using the buttons below
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One of the most moving, sad and at the same time, uplifting stories I’ve ever heard. This video tells it all.
Tricia Somers enjoys watching her 8-year-old son play with Legos. She knows moments like this could soon be gone, not because her son is growing up, but because she is dying.
Somers, 45, was diagnosed with liver cancer last year. In March, she found out it was terminal. The single mother’s biggest concern was her son and who would take care of him when she died.
“He is the only thing I got and I have to leave him,” she said. “It is really hard and I feel bad that I am doing that to him and he says, ‘Mommy it is not your fault.’ “
Somers’ options were limited. Her parents passed away from cancer years ago, her brother told her he did not see a child in his life, and her ex-husband has not been a constant in Wesley’s life.
She was devastated until a nurse, with the…
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A lovely poem about weeds in the garden.
Considered the world’s most prestigious competition of horticultural art, Mosaiculture was displayed at Montreal Botanical Garden in Quebec, Canada, last year. More than three million flowers were raised in greenhouses throughout Quebec, and then shipped to the gardens in May, where designers wrapped them in steel meshes to create living works of art. The sculptures were created using steel or aluminum forms that were wrapped in metal mesh, filled with earth and planted with flowers, ivies and grasses whose foliage provided texture and color. Interior watering systems and growing medium were added so that the flowers could last all through the summer till the end of the exhibition in the end of September.
I invite you to enjoy these amazing images:
Lemurs. This line of lemurs was featured at the entrance.
Water is a gift of Mother Earth, enjoyed by wild horses and eagle.
Lady and Cranes – taken from a Chinese myth.
Lady and Cranes – from a different perspective.
Man Who Planted Trees
Crouching Frog on lily pad.
Cobras. Some of the creations were very tall.
Clown Fish swimming among sea grass.
Barn Owl. One of my favorites of the display.
Bird Tree. This huge sculpture was 40 feet high and a special high bridge was built at this
end so people could take photographs more easily. Each branch became a different bird.
The wing span of the condor was at least 8 feet.
Big Flowers. Notice the large bee at the right.
Butterflies. They were about eight feet high and stood outside the Insectarium,
a building housing exhibits of insects.
Posted in Animals, Art, Birds, Canada, Horticulture
Tagged Canada, flowers, foliage, gardens, living works of art, Montreal Botanical Garden, plants, Quebec, sculpture