Tag Archives: love

One of #MillionsMissing

My daughter has ME – Myalgic Encephalomyelitis.  She’s one of those “#Millions Missing.”  On May 25th of this year, there was a world-wide campaign during which millions of pairs of shoes were placed in front of government buildings to show support for the millions of patients who are “missing” from participating in a “normal” life.  A life which they, against their wishes, were forced to leave, due to the debilitating nature of this horrible disease.

There is no known scientific diagnosis; no cure; and no recognized treatment.  Expert clinicians are still experimenting with medications, supplements, etc., while trying to find ways in which to help their patients.  Some things work – but not for long – to help relieve symptoms.  Each patient reacts differently to these “experiments.”  No such thing as “one size fits all.”

My daughter’s symptoms started approximately 25 years ago.  It was not a sudden onset like many other patients.

It occurred slowly over these many years.  The last two years were the worst.  She was still working, but truthfully, towards the end of 2014, I was positive she couldn’t continue with her job.  I don’t know how she did it, and looking back, she doesn’t, either.

She sort of set goals for herself.  Just another month, just another week.  She finally gave it up at the beginning of this January, when her body just gave up.

She cut her hair years ago.  She didn’t have the strength to take care of it anymore.  She used to have such beautiful, long hair.

There were many other activities of daily living (ADLs) she had to stop.  Frugally managing her time and energy allowed her to hold on for another year at the work site.

It wasn’t only the profound exhaustion.  There is the pain – in every part of her body.  She has told me that even her hair feels pain during the worst days.  The viral outbreaks.  The painful and debilitating chronic migraines which could last for days and keep her in bed, immobilized.  Did you ever hear of a migraine in the optic nerve?  Now, I have.

The “brain fog” and the constant wanting to put her head down and sleep.  Concentration was non-existent.  All these symptoms, put together as they were, forced her to bed.  Work was out of the question.  And she suffered all these and more, while trying so hard to keep her job and not appear to be sick at the office.  They frowned upon “being sick.”

She spends most of her days either lying on the couch or in bed.  It’s not where she would like to be.  She is forced to give up a “normal” life.

Talking on the phone is exhausting, and many is the time I’ve told her to hang up because I can hear and feel the extreme effort in her voice as it slows and gets slurry.

ME patients ARE NOT LAZY; THEY ARE NOT MALINGERERS.  Too many patients have lost their families and friends and even doctors.  These people refuse to believe the patient is REALLY SICK and they crossed the patients off their “list.”  They walked away.  That may be the most debilitating and greatest loss of all.

I’ve touched on only a very small amount of her symptoms.  The general public will find it impossible to understand that which patients go through in trying to manage from day to day; hour to hour.

Each day is different.  She never can expect that the next day will be better.  Too many times, it is worse.  There really is no such thing as “better.”  Sometimes she knows she has over-spent whatever energy (spoons) she had on the day before, and her body lets her know about it, for sure, during the next few days at least.

Myalgic Encephalomyelitis is a multi-symptom chronic disease.  All patients do not suffer in the exact same way; however, they do share most of the known symptoms.  As I said above, “each day is different” for each patient.

Sweetheart, if you are reading this, remember I love you so very much.  Words are not enough.  You know.  It is there in the depths of my being.

This post is my ode to you.  You are the most inspiring person I’ve ever known.  And you happen to be my daughter! 🙂

 

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Kitten in the Basket

This little kitten is very young – still has its baby blue eyes.  It’s a Persian – adorable.  And such a sweet voice.

 

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The Friday File – Synchronicity & Compassion on Route #92

My friend, Cher, posted this beautiful story. I believe it should be shared again and again. Love for one another is still going strong among strangers.

The Chicago Files

Compassion

It’s been a very interesting week here in Chicago.  A few days ago, I was about to take my usual train to a location that is approximately one hour from our area.  Upon approaching the train station, I noticed a bus nearby.  That particular bus also travels in the direction I was heading, but rarely do I take it.  For reasons unbeknownst to me at that moment, I found myself walking up and onto the bus!  Okay, I’ll go with it and see what the day brings.  Traveling by train or bus in Chicago can afford you the time to listen to your favorite music, stare out the window, read, or simply ‘veg’ as my mother likes to say when relaxing.

I was listening to my IPod (yes, I still use one of those!) when there was a slight pause before the next song started.  We were at a bus…

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Celebrating Rusty’s 10th Birthday At The Vet

Happy Birthday, Rusty!

Pussy Cats 3

Rusty’s birthday was yesterday – yeah, I know – he chose a very auspicious day to be born.  But, I wanted to mark his 10th birthday with something special.

What better way than to take him to the vet and assure his Mom that he was healthy?  I knew it anyway, but, just wanted to do the “right” thing.

Dr. Love (that’s her real name) let me listen to his heart through her stethoscope.  It was loud and strong.  She was very pleased.  And so was his Mom!  Dr. Love also said he appears to be a younger cat than one 10 years old.  He has good genes.  I wonder where he gets that from?

We got some so-so news:  He has to have his teeth cleaned.  So, it’s going to happen next Tuesday, Sept. 15th, which happens to be my daughter’s birthday!  Boy, Rusty should feel good…

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For The Love Of…..Boxes

Boxes are still the best!

Pussy Cats 3

It’s a wonder to me that boxes are the best item of interest to my cats.  And most others, I’m sure.

Boxes are the cheapest and most available toy ever!

Rusty, Romeo and Patches never disappoint when it comes to showing how interested they are when a new box comes into the house.

See below:

boxes

boxes 2

boxes 4

boxes 3

boxes 5

boxes 7

boxes 8

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My Bucket List of Gratitude – By Lisa Gastaldo

When help is needed, good friends come through without being asked.

Kindness Blog

bucket listI’m creating my own kind of bucket list. Not the usual listing of things I wish to do before I leave this earth, but an accounting of the gracious drops of kindness that have filled my pail to the brim.

Whether the contribution was a single drip from an eyedropper or gallons upon gallons of generosity, all have buoyed my soul, washed away hours of pain, and carried me through turbulent trials.

And so I have decided to make a conscious effort to recognize these not-so-random acts. Some were as temporary as the morning dew, but equaling as cooling. Others have been like IVs, injecting nourishment continually. A few were summer storms: electrifying, powerful, and brief. Whether their perpetrators knew it or not, each and every one made a significant impact. They quenched my drought in spirit and left me flooded with gratitude.

Item Number 1: Clean House – Warm…

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Out Of The Mouths Of Babes…

 

A shared article on my Facebook page touched me so deeply, that I had to share it with my WordPress readers:

A Dog’s Purpose?
(according to a 6-year-old).

Boy with Wolfhound

Being a veterinarian, I had been called to examine a ten-year-old Irish Wolfhound named Belker. The dog’s owners, Ron, his wife Lisa , and their little boy Shane, were all very attached to Belker, and they were hoping for a miracle.

I examined Belker and found he was dying of cancer. I told the family we couldn’t do anything for Belker, and offered to perform the euthanasia procedure for the old dog in their home.

As we made arrangements, Ron and Lisa told me they thought it would be good for six-year-old Shane to observe the procedure. They felt as though Shane might learn something from the experience.

The next day, I felt the familiar catch in my throat as Belker ‘s family surrounded him. Shane seemed so calm, petting the old dog for the last time, that I wondered if he understood what was going on. Within a few minutes, Belker slipped peacefully away.

The little boy seemed to accept Belker’s transition without any difficulty or confusion. We sat together for a while after Belker’s Death, wondering aloud about the sad fact that animal lives are shorter than human lives.
Shane, who had been listening quietly, piped up, ”I know why.”

Startled, we all turned to him. What came out of his mouth next stunned me. I’d never heard a more comforting explanation. It has changed the way I try and live.

He said,”People are born so that they can learn how to live a good life — like loving everybody all the time and being nice, right?” The Six-year-old continued,

”Well, dogs already know how to do that, so they don’t have to stay as long.”

  • Live simply.
  • Love generously.
  • Care deeply.
  • Speak kindly.
  • Remember, if a dog was the teacher you would learn things like:
  • When loved ones come home, always run to greet them.
  • Never pass up the opportunity to go for a joyride.
  • Allow the experience of fresh air and the wind in your face to be pure ecstasy.
  • Take naps.
  • Stretch before rising.
  • Run, romp, and play daily.
  • Thrive on attention and let people touch you.
  • Avoid biting when a simple growl will do.
  • On warm days, stop to lie on your back on the grass.
  • On hot days, drink lots of water and lie under a shady tree.\
  • When you’re happy, dance around and wag your entire body.
  • Delight in the simple joy of a long walk.
  • Be loyal.
  • Never pretend to be something you’re not.
  • When someone is having a bad day, be silent, sit close by, and nuzzle them gently.

There comes a time in life, when you walk away from all the drama and people who create it. You surround yourself with people who make you laugh, forget the bad, and focus on the good.  So, love the people who treat you right.  Think good thoughts for the ones who don’t.  Life is too short to be anything but happy.  Falling down is part of LIFE…Getting back up is LIVING…

~ Source: Ultima National Resources, LLC

That Is Love

A wonderful short and to the point explanation of true love.

kraftycatcreations

Inspirational QuoteWhat do I love about this inspirational quote? It is about all kinds of love: romantic, friendship, empathetic. Watching your child laugh and play can fill your heart. Your cat purring with contentment can do the same. A stranger dancing with joy at a concert makes you love the show all the more. When you can fill your life with love and happiness just by feeling it through another, you have won the love lottery.  ❤

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These 5 Hero Moms Will Give You Extra Reason to Celebrate Mother’s Day

To my special daughter – I love you very much. You are my inspiration.

kraftycatcreations

  I consider my Mom a hero. The advocating for ME and Autism she does is amazing. She is the one person I can count on to show understanding and unconditional love to a daughter who’s road is rocked by chronic illness. All my love, Mom, today and always.

The following story is from “Time”

Written by @tcberenson

From saving a drowning couple to rescuing kids from a bear

It’s true that every mother is a hero, which is why we have Mother’s Day. It’s just one small day of the year for people to appreciate everything mothers do for their families. But it’s also true that all acts of maternal heroism are not created equal. Dealing with the daily challenges of raising kids is one thing, but saving children from a bear is quite another. So here, in honor of Mother’s Day, we present five hero moms of…

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Gallery

At the end of the day …. “Letter From A Mother To A Daughter”!!

This gallery contains 16 photos.

Originally posted on It Is What It Is:
~~May 10, 2015~~  I know that many of you may have already seen this. I think this is a fitting way to end this year’s Mother’s Day. I can relate so well…