Tag Archives: you don’t look sick

Spreading the Message About M.E. (Myalgic Encephalomyelitis)

Most of the world’s population – and pointedly – most of the medical community of the world, still does not know what M.E. (Myalgic Encephalomyelitis) is; if they have heard about it, they don’t know much about it.  It is the “invisible illness.”  All the “bad” things are going on, beneath the skin, in the body of those afflicted, and, when looking at the patients, all you can say or think is, “You don’t look sick.”  This is why the medical and governmental communities of most countries prefer to consider M.E. as a psychosomatic illness, rather than the severe physical illness that it is.

Points to ponder:  HIV/AIDS and MS victims “don’t look sick” either, in the early stages; however, the medical community does not consider these patients as having “psychosomatic” illnesses, because the well-funded research for these has uncovered the cause and the detectable tests for them and thus, treatment, if not cures, has come forth.  So it is with M.E., except for the fact that our government has not seen fit to put the research funds needed into the hands of the dedicated scientists who are willing to continue research into the cause – or causes – of M.E.

The video (Sleepydust) below, uploaded onto Youtube on November 30th, 2006, aims to help the friends and families of M.E. and Post Viral Fatigue Syndrome sufferers to understand the illness and what their loved ones are going through.  Even though this video is almost 8 years old, almost all of the information contained in it is still relevant.  This means that there has not been sufficient research from 2006 till now, for cause; or for proper treatment of symptoms; or better yet, a cure.

Myalgic Encephalomyelitis is extremely debilitating; many become housebound; some even become bedridden; and there are those whose bodies cannot fight anymore, and they die.  Advocacy for these terribly afflicted patients is all important.  Please take the time to view the short 9-minute video and help to spread the message.



Mama Chill in the UK Has a Blog on Blogspot

Mama Chill has M.E.  She doesn’t post often, but when she does, it grabs you.  She “tells it like it is.”  Please read her latest: