Tag Archives: Pandora.org

P2P and The Mess with Pain Medications

M.E. patients need relief from the pain they suffer 24/7.  What happens when they run out of their medication, and go to the ER?  Normally, they would be treated like a drug addict who is looking for more drugs.

Controlled substances must be prescribed for 30 days, with 2 refills.  Original prescriptions must be picked up at the doctor’s office and then hand delivered to the pharmacy.  This puts a great hardship on the patient, especially when that patient has to travel many miles to see the doctor every 3 months, and the patient is disabled by the disease and/or other physical disabilities.

Chronic pain and opioid use is a fact of life with patients who suffer from different chronic illnesses; such as MS, Fibromyalgia, etc.

The video below discusses this topic in detail.  A good listen.



P2P Is Not For M.E. – Myalgic Encephalomyelitis

The video below details the NIH P2P (Pathways to Prevention) pending Workshop which is scheduled to begin next week (Dec. 9-10).
 Pandora.org produced and shared this webinar in social media.  Discussed in the video is: the P2P non-expert panel who, for the most part, do not understand the disease; the link to view the workshop, and how to vote.
This shared, detailed information is important to advocates and patients, because there is a lack of necessary questions and answers that are pertinent to the chronic, multi-symptom illness.  It is believed that this Workshop will set the cause of M.E. and necessary research funding back into the 1980s.

Non-experts should not be allowed to make decisions about M.E.