A guest blogger (Rivka Solomon) posted on Erica Verrillo’s blog, “Onward Through the Fog,” (both women are patients suffering with ME/CFS) and she tells her story of 25 years with this disease, and about her raised hopes upon learning that Dr. Francis Collins, Director of the NIH, has announced IT IS A DISEASE and deserves government research. The U.S. government’s (at long last) recognition of this debilitating disease, has given hope to all sufferers, their families and friends.
There is one thing, upon reading Rivka’s post, that I hadn’t known before; that is, this disease has grown so widely, that there are past and current NIH employees who are ill with it, and also, employees working for and with the NIH who have family members who are greatly debilitated by the disease.
Again, it is not only what you know; it’s WHO YOU KNOW, that will make inroads possible. A fact of life.
A popular saying I’ve heard many times: Cancer is such a popular disease, that there isn’t one family which hasn’t been affected by it. It seems to me, that, as Myalgic Encephalomyelitis is growing here and around the world, there may come a time when that saying will apply to this disease.
Our NIH researchers better move quickly and make up for all the thirty years of wasted time.
DO YOU HEAR THAT, DR. COLLINS??
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