Thanks to Tom Kindlon for this ME awareness video. Two ME patients answer pointed questions from Dr. Franky Dolan, regarding their symptoms and how having an “invisible, multi-symptom disease” has affected all aspects of their lives.
What is striking in this video (9 minutes; 40 seconds) is the seemingly happy, carefree vibes given off from the two women by their laughter and body language – until they seriously answer the questions. This “mask” is the common outward appearance donned by very ill people when they are with those who are not ill.
Sadly, Amberlin, the woman on the left, wearing sunglasses due to light sensitivity (common with ME), died by suicide a few years after this video was made. The seriousness of, and debilitation caused by, myalgic encephalomyelitis, has resulted in many suicides.