Findings might help doctors diagnose the baffling condition.
It’s not a secret that ME/CFS is a very difficult illness to diagnose. Patients presenting multi-symptom complaints are often misdiagnosed or labeled as hypochondriacs.
There are clear differences in the brains of people with ME/CFS and the brains of healthy people, new research indicates. One of the many symptoms is inflammation of the brain, shown by MRIs.
ME/CFS affects up to 4 million people in the United States alone. This assessment (updated from a year ago’s 1 million) is reported by the U.S. Centers for Disease Control and Prevention (CDC).
“[Myalgic Encephalomyelitis]/ Chronic Fatigue Syndrome is one of the greatest scientific and medical challenges of our time,” said the study’s senior author, Dr. Jose Montoya, professor of infectious diseases and geographic medicine, in a Stanford report.
ME/CFS patients in the U.S. number more than MS and AIDS patients added together, yet, government funding for MS and AIDS research has been 4 times that of ME/CFS in recent years!
Despite the HHS, CDC, NIH et al’s negative and misguided attitudes of the last several years, and particularly the problems with IOM (Institute of Medicine) and P2P (Pathways to Prevention) Workshop, I have the distinct impression that there is more focus on finding a solution to the problems of ME/CFS than ever before.
Research in Nevada, and California is getting ramped up through mostly private funding. If we depended upon the HHS’s funding up to now, nothing would be progressing in the necessary research; in fact, HHS has been doing everything it can to prevent progression in research. My past posts on M.E. Advocacy will shed light on that.
The very active WordPress, Blogspot (Google) blogs and Twitter accounts of ME/CFS patients and advocates that I find, proves that we (ME/CFS patients and advocates) are not sitting on our hands in this fight.
As sick as so many patients and patient-advocates are, there is an inner strength (digging very deep down to find) that keeps everyone pushing to their limits and beyond. And, they suffer physically for it for many days, weeks, months or even years. More than 3 decades of being pushed aside and told “it’s all in your head and go see a psychiatrist for your depression” means it must stop. NOW.
[Image from bingdotcom]