Prior to reading this post, please be aware that the term, “Chronic Fatigue Syndrome,” is used by a small contingent of the medical community who might be aware of the medical condition.
Most do not know of it by its actual proper and medically correct name: Myalgic Encephalomyelitis (M.E.). It is incorrectly referred to as CFS, Chronic Fatigue Syndrome or simply, Chronic Fatigue.
I was “rummaging” through my Twitter account, when I came across a tweet from “Canary Film” (Twitter handle, @canaryfilm). I have a vested interest in the making of that still-in-production film entitled, “Canary in a Coal Mine.” I supported it, because my daughter has M.E. The link in the tweet brought me to the Myalgic Encephalomyelitis Daily.
There are several posted articles relating to Myalgic Encephalomyelitis, of course, and a couple of the headlines stood out to me:
- What is chronic fatigue syndrome and why aren’t we doing more to treat the illness?
- How the definition of chronic fatigue keeps changing.
Both articles, dated October 6, 2014, were written by Julie Rehmeyer, Science Writer, for the Washington Post. In the first, she describes her physical ailments she was suffering while she visited her neurologist, and what she describes are some of the symptoms suffered by M.E. patients. Since M.E. is a multi-symptom disease, not all of the patients suffer all of the symptoms all of the time. She also states some doctors have little understanding of the condition and are skeptical that it exists.
In the second article above, Julie did her research and found out about how the change occurred from the original, correct name of the disease, Myalgic Encephalomyelitis, to the CFS misnomer. Julie also describes some part that the CDC played in this unfortunate renaming of the horrible disease. (There is more to the CDC involvement than what she mentions).
I personally feel very badly for Julie, that she received this diagnosis. I see, through the gradual – over the years – increasing of this debilitating disease, the toll it’s taking on my daughter.