A most important post regarding M.E. (myalgic encephalomyelitis) and its symptoms. I was particularly impressed with the observation, “Another reason the diagnostic criteria is so important is that researchers will never get to the root cause of M.E., and ultimately find a cure or effective treatment, if they’re studying people who don’t have the disease to start with.”
M.E. is one of the most abused diagnoses of the last Century and the disease is definitely the most misunderstood, neglected and fought-over of our time. For many years I’ve avoided the politics of M.E. because of any topic it’s the one that can make my blood boil in a nano-second and the stress isn’t good for my health. Having said all that, it’s still worthy of a post (but I’m not going to make a habit of it).
The reason it’s worth a post is that many of the people I’ve come across over the years with a variety of other diseases, eg. Ehlers-Danlos, Lyme, Lupus, Sjogrens, Coeliac and many others, were initially diagnosed with Chronic Fatigue Syndrome before the real cause for their fatigue was found and their diagnosis was changed. Over recent years M.E. has been reclassified as CFS and the diagnostic criteria watered down to such…
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